Lions Stories

Lion Story 1:

Our eldest Daughter who died of brain tumour (Glioblastoma multiforme(GBM).

Sadly this form of brain tumour is a grade 4, which by the grade usually means you are  likely going to die from it.

Quite often within the first year of prognosis .

It is a hideous disease and one of the common brain tumours unfortunately. Our daughter was first  diagnosed at age 39 ,

having first become ill whilst in Spain on holiday with her 2 young children and her husband.

 

 On returning home I collected them at the airport and her husband then drove her to our local hospital,

where she received a ct scan and was immediately sent by ambulance to the famous St Georges hospital London

and further tests and MRI confirmed surgery was to be immediate.

After release from hospital she underwent the radiation and later chemotherapy.

Sadly after a month of the first brain surgery the tumour regrew,

to which she underwent further surgery.

Then a long break until a third tumour appeared and once again surgery to remove this fast growing 3rd tumour was conducted.

Meanwhile she had fits and severe eyesight loss and coordination issues.

It was really tough for her and to her loving family,

Elizabeth (Not her real name) was then able to be treated with a new drug to give her extra time

but sadly after 2 3/4 years from the first diagnosis,

she sadly passed away at home soon after her 41st birthday May 2014.

She left a husband,  daughter aged 11 and son aged 8.

A younger sister age 34 with 2 young daughters and we her parents

and we none of us can really get over this tragic loss of our beautiful daughter ever ,

we have to manage best we can.

She is pictured on my phone everytime I switch it on and her photo is by our bedside.

Many families like ours face this dreadful situation

and this is why we are so compelled to seek funds for the research necessary

to put brain tumours to the history books. 

Lion Story 2:

So why am I supporting The Lions Brain Tumour Research Appeal?
Well, May 2017 saw me as fit, healthy, busy wife, mum of 2 (daughter just graduated from university and about to embark

on a career as a teacher at an International School in Bangkok, son about to go into his second year at college and onto university) working as a clinical nurse specialist in the NHS.


Why did life suddenly change for me and my family then?
I started to experience a very intermittent, sharp, pulsating pain at the top of my head.

This lasted seconds and then went. It sometimes occurred when I was bending down but not always.

I had no other symptoms that I was aware of.


I saw my GP who thankfully sent me for an MRI of my head. I’m eternally grateful he did. 
I had the scan done one Saturday morning and was re called to hospital a couple of hours later.

The MRI had revealed 2 large brain tumours…. both about the size and shape of large eggs,

one slightly bigger than the other, one on top of the other.

The bottom one had buried itself deep inside my brain it was later discovered.
Stunned, shocked and frightened - not just me, but family, friends and colleagues.
I was immediately started on intensive drug treatment.


The following couple of weeks passed in a busy blur of many consultations, tests , investigations

and numerous different types of scans. 


I underwent, what the consultant described as, complex, complicated 7 hours of surgery.

I spent 24 hours in Intensive Care and a week in hospital. 


One tumour was successfully removed but some of the deeper tumour had to be left behind.

The tumours were found to be Atypical Grade 2 with some rapid growth cell changes.

(Grading is 1 to 4)  More consultations, more scans and treatments.

I also underwent 6 weeks of daily Radiotherapy.

Brutal but essential and knocked the stuffing out of me.

 

Believe me though, I am truly grateful and thankful.

I  have nothing but praise for the amazing, dedicated staff in numerous departments at The Queen Elizabeth Hospital Birmingham.

I received and continue to receive, the very best, evidence, research based, appropriate care - always delivered with the utmost kindness, professionalism, efficiency and compassion.

 

Recovery has been slow with many challenges.
I have also received and continue to receive amazing support and friendship from Brain Tumour Support Charity.

I am so very lucky and very appreciative that I am still here. 
You will also be pleased to know that I donated what was removed at surgery for Brain Tumour Research. 


Sadly, I was unable to return to work because of on going health issues due to my diagnosis but, after 40 years working in the NHS, perhaps it was finally time to put my feet up! 


As a result of this, I joined Lions International and I haven’t looked back.

Yes there are things I cannot do or participate in, however, there are equally lots of things I can do and help with.

Our Lions club fully supports and continues to raise funds for The Lions Brain Tumour Research Appeal. 
Please help to ensure this essential and vital work continues, develop treatments and therapies and hopefully, eventually find a cure.